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After hugs, kisses & baptism, bucket-list baby dies peacefully in mother’s arms

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(CNN) — Before he was even born, Shane Michael Haley had already met the Philadelphia Phillies, been to the top of the Empire State Building and shared a cheesesteak with his parents.

The priceless moments were part of a bucket list that Jenna and Dan Haley created after Shane was diagnosed in the womb with anencephaly, a birth defect in which a baby is born without parts of the brain and skull. The life expectancy for babies born with anencephaly is a few hours to a few days at most.

The Philadelphia couple made it through the list before baby Shane was born at 2:25 a.m. Thursday, according to their Facebook page. He died a few hours later.

“Today at 6:15 a.m., after meeting his entire family and being baptized into the Catholic faith, baby Shane died peacefully in his Mother’s arms,” the couple said on its Facebook page. “We are so grateful for the time that we were blessed to hold and hug our son.”

The couple’s story touched more than 700,000 people who followed their Facebook page for updates on Jenna Daley’s condition and their bucket list travels from the Jersey shore to Times Square.

“The support and prayers we have received from all of you have been amazing and we want to thank each of you with all our hearts,” the couple said. “Shane spent his entire life in the arms of people that loved him unconditionally and I don’t think you could ask for a more beautiful life then that.

“He is home now with the Lord and will forever be our little miracle!”

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14 comments

  • 7

    Its crazy but he has done more in his life than most babies who have been here for a couple of hours. I know he loved it. He passed in the arms of his mother….wow. True love story , sad and heartbreaking, but a beautiful love story

    • Regina

      I’m sorry that you’re feeling so hurt and angry that you need to call a vulnerable human being who brought joy to those who loved him “worthless”. And taking a swipe at Republicans is quite the non sequitur for this story. Are you angry because there are more Republicans who are likely to be consistently pro-life and value this baby than Democrats? That seems like a strange thing to be angry about. There are a lot of Democrats will see the beauty in this baby’s life, and Republicans probably advocate other policies that are more worthy of criticism. I really hope that you can think about how you are living your life and whether it’s worth it to spend it lashing out at people who find joy in things that you don’t. Is your hyper-rationality making you a better, happier person? Or is it costing you real wisdom, and your humanity? It’s never too late to make a change, and you’d be surprised at how rich your world can be if you do.

      • Ardvarking

        This is the most sane and fair comment I’ve ever seen on the internet. I hope I can be like you one day. You have a beautiful soul.

      • poe

        Ben thinks he has such a clever name but in all reality its almost as ignorant as he is…..see, Ben has no friends and his family cant stand him, therefore he has nothing better to do with his time than to sit on his fat and ugly ass just looking for things he disagrees with so he can attempt to make other people as miserable as he is.. what a POS ….He is probably not even aware of what a fucktard he is and how disgusting he sounds

    • Kimberly Klonowski

      That is awful to say. What if that was your kid or a family members child? If it was you would probably being flipping out at the horrific comment that you made. These parents just lost there child. A child that was loved more than anything in the world by his parents. My words to you are GROW UP and have a little compassion. Your life can change in the blink of an eye and I hope that no one is as mean or cruel to you as you have been to this family. This isn’t about politics either, it is about human decency and the loss of life.

    • poe

      Pathetic that you think “Ben Dover” is even clever…..NEWS FLASH: its stupid, what are you like an 11 year old little boy who just learned how to jack off with your little 2 incher?? And too chicken shit to even use a real name!!!! Pathetic loser!!!

    • Brianda tello

      Are you ok man . What would you feel if it was ur kid the one they were talking abou think about it ? Life is to short and this baby had the life he could’ve ever have his parents decided to keep him alive tjrough out those 9 months even if he wasnt devolped right i think he diserved that gift from his parents the showes the world that thiere faith was stronger than the fear and the pain. Tell me that not cute when it is . If you had a child like this trust me you wouldve gave it those 9 months and those hours to your baby . So stop saying things that are nonsence . If you have any other negative coments keep them to your slef pleas cause no one apreacts your nagativity in this @Ben Dover